Frequently Asked Questions
How are People Affected?
People affected by PIDs have a varying range of symptoms which are determined by the specific variation of PID that they have been diagnosed with. The symptoms can vary drastically between experiencing recurrent colds all the way to experiencing heart conditions and pneumonia.
PIDs are rare conditions and as such can be undiagnosed for many years which results in extreme health problems such as organ failure and disability.
How Did I Get PID?
The condition is the result of errors in the genes of the cells that make up the immune system. Generally people are born with the condition, and they are categorised as genetic disorders meaning they will pass from one generation to the next hereditarily.
In patients with PID some of the DNA building blocks for the immune system are either altered or not there entirely. Because of this some genes are missing or faulty causing the bodies defence against infection not to work or not to be made properly.
Will PID control my life?
Not at all. Being someone who suffers with PID will, of course, have some effect on your life, but it need not stop you from living a normal and fulfilling one. Many sufferers notice an increase in illnesses such as colds and a general unwell feeling, it is therefore important to take steps to safeguard yourself from falling ill. Regular exercise, a healthy diet and ensuring the body is provided with its required vitamins and nutrients can be an excelent way of staying fit and healthy, despite having PID. The main aim is to lead a lifestyle that assists your body's immune system.
Who can I talk to?
This is possibly the most important part; having someone to talk to. PID is a rare condition, however, Doctors and medical experts are aware of it. Speak to your Doctor if you suspect PID might be effecting you.
It is all too easy to feel isolated when diagnosed with any condition, but this shouldnt be the case. Just because you have a particular condition, should not alter your outlook on life. Talk with loved ones and friends; enable them to support you through your difficulties. You may need to make some adjustments, depending on the severity of your condition, however, this is easily achievable and better tackled with the help of others.
Why Primary?
The condition is prefaced as primary in order to separate the classification from those whose immune system is affected from a secondary cause such as HIV.
There is no connection between PID and AIDS, which is an acquired immunodeficiency.